@article{Adib2019b,
title = {Perceived stress among caregivers of children with autism spectrum disorder: A state-wide study},
author = {N A N Adib and M I Ibrahim and A A Rahman and R S Bakar and N A Yahaya and S Hussin and W N A Wan Mansor},
url = {https://www.scopus.com/inward/record.uri?eid=2-s2.0-85065303613&doi=10.3390%2fijerph16081468&partnerID=40&md5=fc871375f0d307a95820cd87c57ea270},
doi = {10.3390/ijerph16081468},
issn = {16617827},
year = {2019},
date = {2019-01-01},
journal = {International Journal of Environmental Research and Public Health},
volume = {16},
number = {8},
publisher = {MDPI AG},
abstract = {Background: Caregivers of children with autism spectrum disorder (ASD) experience increased stress and more significant negative caregiving consequences than those with typically developing children. There is a lack of studies specifically focusing on stress among caregivers with ASD children in Asian countries. The current study examines levels of perceived stress and factors associated with it among caregivers in Kelantan, Malaysia. Methods: In a cross-sectional study, the Malay version of the Perceived Stress Scale (PSS) was administered to 227 caregivers of children with ASD. The caregivers were recruited from ASD databases in four tertiary hospitals in Kelantan and a meeting was set up during the child’s follow-up in the clinic. Multiple linear regression analyses were applied to determine the predictors of perceived stress. Results: The mean total perceived stress score was 20.84 (4.72). This was considered higher than average. Higher perceived stress was significantly predicted among caregivers who live far from the health institution, caregivers who do not own transportation to bring the child to the treatment center, and caregivers who have an ASD child with a learning disability. Conclusion: Caregivers of an ASD child perceived significant stress while taking care of their children. Institutions should alleviate the factors that were predicted to increase the caregivers’ perceived stress to improve the quality of the lives of children and ASD families as a whole. © 2019 by the authors. Licensee MDPI, Basel, Switzerland.},
note = {cited By 0},
keywords = {Adaptation, Adolescent, Adult, Article, Autism, Autism Spectrum Disorders, Caregiver, Caregiver Burden, Child Care, Children, Coping Behaviour, Cross-Sectional Study, Female, Follow Up, Health Care, Health Care Access, Human, Infant, Learning Disorder, Malaysia, Male, Mental Stress, Middle Aged, Multiple Linear Regression Analysis, Newborn, Normal Human, Patient Transport, Perceived Stress Scale, Prediction, Preschool, Preschool Child, Psychological, Psychology, Psychometrics, Psychometry, Quality of Life, Stress, Tertiary Care Center, University Hospital},
pubstate = {published},
tppubtype = {article}
}

@article{Alwi2014369,
title = {Psychological distress among parents having offspring with autism spectrum disorder (ASD) - A clinical view point},
author = {N Alwi and D Harun and L J Henry},
url = {https://www.scopus.com/inward/record.uri?eid=2-s2.0-84927968335&doi=10.1016%2fj.dhjo.2014.04.008&partnerID=40&md5=a07c401e41bcac2ae5884cd4e8b8db30},
doi = {10.1016/j.dhjo.2014.04.008},
issn = {19366574},
year = {2014},
date = {2014-01-01},
journal = {Disability and Health Journal},
volume = {7},
number = {4},
pages = {369-370},
publisher = {Elsevier Inc.},
note = {cited By 1},
keywords = {Autism, Autism Spectrum Disorders, Caregiver, Child Parent Relation, Coping Behaviour, Counseling, Depression, Disabled Person, Disabled Persons, Distress Syndrome, Family, Human, Letter, Marriage, Mental Stress, Parental Stress, Parents, Priority Journal, Progeny, Psychological, Psychological Well Being, Psychology, Single Parent, Social Status, Stress, Wellbeing},
pubstate = {published},
tppubtype = {article}
}