@article{Ooi2016745,
title = {A meta-synthesis on parenting a child with autism},
author = {K L Ooi and Y S Ong and S A Jacob and T M Khan},
url = {https://www.scopus.com/inward/record.uri?eid=2-s2.0-84962625349&doi=10.2147%2fNDT.S100634&partnerID=40&md5=48b432dc361f8f3c373ed3b481e01e4c},
doi = {10.2147/NDT.S100634},
issn = {11766328},
year = {2016},
date = {2016-01-01},
journal = {Neuropsychiatric Disease and Treatment},
volume = {12},
pages = {745-762},
publisher = {Dove Medical Press Ltd.},
abstract = {Background: The lifelong nature of autism in a child has deep implications on parents as they are faced with a range of challenges and emotional consequences in raising the child. The aim of this meta-synthesis was to explore the perspectives of parents in raising a child with autism in the childhood period to gain an insight of the adaptations and beliefs of parents toward autism, their family and social experiences, as well as their perceptions toward health and educational services. Methods: A systematic search of six databases (PubMed, EMBASE, PsychInfo, Cochrane Central Register of Controlled Trials, Cochrane Database of Systematic Reviews, and Database of Abstracts of Reviews of Effects [DARE]) was conducted from inception up to September 30, 2014. Full-text English articles of qualitative studies describing parents’ perceptions relating to the care of children younger than 12 years of age and diagnosed with a sole disorder of autism were included. Results: A total of 50 eligible articles were appraised and analyzed, identifying four core themes encompassing all thoughts, emotions, and experiences commonly expressed by parents: 1) The Parent, 2) Impact on the Family, 3) Social Impact, and 4) Health and Educational Services. Findings revealed that parents who have a child with autism experienced multiple challenges in different aspects of care, impacting on parents’ stress and adaptation. Conclusion: Health care provision should be family centered, addressing and supporting the needs of the whole family and not just the affected child, to ensure the family’s well-being and quality of life in the face of a diagnosis of autism. © 2016 Ooi et al.},
note = {cited By 44},
keywords = {Adaptation, Article, Attitude to Health, Attitude to Mental Illness, Autism, Child Care, Child Parent Relation, Childhood, Family, Family Centered Care, Health Care, Health Care Delivery, Health Education, Human, Parental Attitude, Parental Stress, Quality of Life, Social Aspect, Systematic Review, Wellbeing},
pubstate = {published},
tppubtype = {article}
}

@article{Blum2006273,
title = {Balancing individual rights versus collective good in public health enforcement},
author = {J D Blum and N Talib},
url = {https://www.scopus.com/inward/record.uri?eid=2-s2.0-33746936600&partnerID=40&md5=a2c4c6236febc643356d94b27241a893},
issn = {07231393},
year = {2006},
date = {2006-01-01},
journal = {Medicine and Law},
volume = {25},
number = {2},
pages = {273-281},
publisher = {Yozmot Heiliger Ltd},
abstract = {This paper explores the balance between common good and individual liberty in the context of public health regulation. The issues are explored in reference to two areas of regulation, isolation and quarantine in the case of SARS, and the rights of parents to refuse mandatory childhood immunizations. In the case of SARS, the analysis explores the age old practice of isolation and quarantine, an important preventive measure with clear civil liberty implications. In reference to childhood immunization the paper considers the American controversy involving the refusal of parents to have their children vaccinated, fearing that mercury in vaccines will lead to autism. The analysis explores the US Supreme Court case of Jacobson v. Massachusetts which 100 years ago established a four part test for evaluating claims of individuals that government public health authorities were infringing on their liberty interests. The paper endorses the four elements of necessity, reasonableness, proportionality, and harm avoidance identified in Jacobson, but calls for a more rigorous scientific evaluation to accompany this traditional test. © YOZMOT 2006.},
note = {cited By 6},
keywords = {Article, Autism, Childhood, Court, Freedom, Government, Harm Reduction, Human, Human Rights, Immunization, Infection Control, Infection Prevention, Jurisprudence, Mercury, Parental Behavior, Public Health Service, Severe Acute Respiratory Syndrome, Severe Acute Respiratory Syndrome Vaccine, Social Isolation, Treatment Refusal, United States, Vaccination},
pubstate = {published},
tppubtype = {article}
}