@article{Ooi2016745,
title = {A meta-synthesis on parenting a child with autism},
author = {K L Ooi and Y S Ong and S A Jacob and T M Khan},
url = {https://www.scopus.com/inward/record.uri?eid=2-s2.0-84962625349&doi=10.2147%2fNDT.S100634&partnerID=40&md5=48b432dc361f8f3c373ed3b481e01e4c},
doi = {10.2147/NDT.S100634},
issn = {11766328},
year = {2016},
date = {2016-01-01},
journal = {Neuropsychiatric Disease and Treatment},
volume = {12},
pages = {745-762},
publisher = {Dove Medical Press Ltd.},
abstract = {Background: The lifelong nature of autism in a child has deep implications on parents as they are faced with a range of challenges and emotional consequences in raising the child. The aim of this meta-synthesis was to explore the perspectives of parents in raising a child with autism in the childhood period to gain an insight of the adaptations and beliefs of parents toward autism, their family and social experiences, as well as their perceptions toward health and educational services. Methods: A systematic search of six databases (PubMed, EMBASE, PsychInfo, Cochrane Central Register of Controlled Trials, Cochrane Database of Systematic Reviews, and Database of Abstracts of Reviews of Effects [DARE]) was conducted from inception up to September 30, 2014. Full-text English articles of qualitative studies describing parents’ perceptions relating to the care of children younger than 12 years of age and diagnosed with a sole disorder of autism were included. Results: A total of 50 eligible articles were appraised and analyzed, identifying four core themes encompassing all thoughts, emotions, and experiences commonly expressed by parents: 1) The Parent, 2) Impact on the Family, 3) Social Impact, and 4) Health and Educational Services. Findings revealed that parents who have a child with autism experienced multiple challenges in different aspects of care, impacting on parents’ stress and adaptation. Conclusion: Health care provision should be family centered, addressing and supporting the needs of the whole family and not just the affected child, to ensure the family’s well-being and quality of life in the face of a diagnosis of autism. © 2016 Ooi et al.},
note = {cited By 44},
keywords = {Adaptation, Article, Attitude to Health, Attitude to Mental Illness, Autism, Child Care, Child Parent Relation, Childhood, Family, Family Centered Care, Health Care, Health Care Delivery, Health Education, Human, Parental Attitude, Parental Stress, Quality of Life, Social Aspect, Systematic Review, Wellbeing},
pubstate = {published},
tppubtype = {article}
}

@article{Bhagat201654,
title = {Parent’s negative emotionality impacting parenting and involvement in the intervention of their child with autism spectrum disorder: A review proposed the new model for intervention},
author = {V Bhagat and H J Khairi Che Mat and R Husain and M Haque},
url = {https://www.scopus.com/inward/record.uri?eid=2-s2.0-84957597820&partnerID=40&md5=40212e84a1b6be6ade2617d5c9df29a9},
issn = {0976044X},
year = {2016},
date = {2016-01-01},
journal = {International Journal of Pharmaceutical Sciences Review and Research},
volume = {36},
number = {1},
pages = {54-62},
publisher = {Global Research Online},
abstract = {Raising a child with an autism spectrum disorder (ASD) is a challenging for their parents. Child’s life with this disease is severely affected. Indeed, it impacts not only the child, but also parents and siblings, causing disturbances in the family. The experience of parents with an autism spectrum disorder can be distressing; they have a critical need to cope with complex situations in their lives. The presence of pervasive and severe deficits in children with ASD increases the adjusting demands of parents in their life situations, this in turn distress them deliberately and further restrict them in the ways of child rearing and to give the best of themselves. These parents are found with negative emotionality in their personality component. They end up being shattered in their interpersonal relationship and family life. Indeed, their negative emotions disturb their focus on the treatment of their ASD child. Thus, the management of ASD child incapacitates their parents to bring out the best. Therefore, there is a need for intervention of ASD with emphasis on negative emotions of these parents and affecting the parental efficacy. However, it must also be kept in mind that the improvement in the diagnosed ASD child, especially as the time and expense spent on intervention can be even more detrimental to the parents, especially with their emotional component of their personality. This proposed a new model of intervention incorporating assessment and management of parental emotionality as a part of the intervention. Further aiming at integrating this model into the current regulated system of intervention and can be a source for directing the alternative platform for further research in this regard. © 2016, Global Research Online. All rights reserved.},
note = {cited By 0},
keywords = {Autism, Children, Disease Severity, Emotion, Emotionality, Evidence-based Practice, Human, Human Relation, Intervention Study, Negative Emotionality, Parent Counseling, Parental Attitude, Parenting Education, Personality Assessment, Review, Social Status, Stress},
pubstate = {published},
tppubtype = {article}
}

@article{Siah201559,
title = {Sense of coherence and WHOQoL among parents of children with ASD in Malaysia},
author = {P -C Siah and S -H Tan},
url = {https://www.scopus.com/inward/record.uri?eid=2-s2.0-84922567900&doi=10.1515%2fijdhd-2013-0039&partnerID=40&md5=a909c24c26550aebe2c8922063d70001},
doi = {10.1515/ijdhd-2013-0039},
issn = {21911231},
year = {2015},
date = {2015-01-01},
journal = {International Journal on Disability and Human Development},
volume = {14},
number = {1},
pages = {59-66},
publisher = {Walter de Gruyter GmbH},
abstract = {Studies have shown that most parents of children with autism spectrum disorder (ASD) face more stress and have a poorer quality of life (QoL) than other parents. Nonetheless, there are still some parents of children with ASD who are able to maintain or even improve their QoL. This study is aimed to explore the relationship between SoC and WHOQoL among parents of children with ASD. Method: A total of 96 parents of children with ASD were invited to participate using a purposive sampling method. Results: The results suggested that participants in the high SoC group had better QoL in the four domains than those in the low SoC group. More importantly, not all types of SoC were relevant to QoL. Comprehensibility was relevant to all the four QoL domains and manageability was relevant to physical and psychological health, while meaningfulness was not relevant to any of the QoL domains. Conclusions: NGOs may improve the QoL of these parents by providing trainings to improve their SOC, especially in comprehensibility and manageability. © 2015 by De Gruyter.},
note = {cited By 2},
keywords = {Adult, Age, Article, Autism, Children, Comprehension, Education, Employment, Environmental Factor, Female, Gender, Han Chinese, Health, Housewife, Human, Income, Indian, Major Clinical Study, Malay, Malaysia, Male, Marriage, Mental Health, Parental Attitude, Pensioner, Psychological Aspect, Quality of Life, Religion, Sampling, Sense of Coherence, Social Interactions},
pubstate = {published},
tppubtype = {article}
}

@article{Bhagat2015403,
title = {The peripheral focus on the psychological parameters of parents of autistic children in the intervention methods: A review and recommending the strategy, focusing psychological parameters of parents of autistic children in intervention methods},
author = {V Bhagat and N Bin Simbak and M Haque},
url = {https://www.scopus.com/inward/record.uri?eid=2-s2.0-84959853109&doi=10.5530%2fjyp.2015.4s.1&partnerID=40&md5=ed5b5faede6650d1249a902d7201ed43},
doi = {10.5530/jyp.2015.4s.1},
issn = {09751483},
year = {2015},
date = {2015-01-01},
journal = {Journal of Young Pharmacists},
volume = {7},
number = {4},
pages = {403-414},
publisher = {EManuscript Services},
abstract = {The experience of parents with an Autism Spectrum Disorders (ASD) can be devastating. Parents and families have to cope with the compound, demanding situation in their life. The presence of pervasive and severe deficits in children with ASD increases the adjusting demands of parent's in their life situations. Those coping with life complexity with the parents of ASD nudge them into stress later into distress slowly incapacitates them that of their efficiency to deal with this situation. These parents are found with disturbances in their psychological parameters such as social, sexual, economic, and emotional. Perhaps this shatters them from their interpersonal relationship and family life. Indeed, these aspects of parental distress stand lower in position, and the focus goes with the treatment of ASD. Thus, the management of ASD by these parents to their deficit child capacitating to reach their fullest abilities remains questionable. Thus, there is a need for intervention of autistic children with a peripheral focus on psychological parameters of parents of ASD. This review study focuses on division of attention required for the treatment of ASD towards the child with autism and the parents who manage them.},
note = {cited By 0},
keywords = {Autism, Coping Behaviour, Decision Making, Disease Severity, Economic Aspect, Emotion, Emotionality, Experience, Human, Human Relation, Intervention Study, Parental Attitude, Parental Stress, Priority Journal, Psychological Well Being, Review, Satisfaction, Social Behaviour, Strategic Planning},
pubstate = {published},
tppubtype = {article}
}

@article{Shobana201416,
title = {Comparative study on attitudes and psychological problems of mothers towards their children with developmental disability},
author = {M Shobana and C Saravanan},
url = {https://www.scopus.com/inward/record.uri?eid=2-s2.0-84898619897&partnerID=40&md5=e877e03b868d1a11ed8f859a33057d5d},
issn = {20789947},
year = {2014},
date = {2014-01-01},
journal = {East Asian Archives of Psychiatry},
volume = {24},
number = {1},
pages = {16-22},
publisher = {Hong Kong Academy of Medicine Press},
abstract = {Objective: Parents' positive attitudes and psychological wellbeing play an important role in the development of the children with developmental disability. This study aimed to measure the prevalence of psychological problems among mothers of children with autism disorder, intellectual disability, and Down syndrome. The second aim was to assess the differences in mothers' attitudes and psychological problems among their children with intellectual disability, autism disorder, and Down syndrome. The third aim was to identify whether negative attitude was a predictor of psychological problems in these mothers. Methods: In this study, 112 mothers of children having mild and moderate levels of autism disorder, Down syndrome, and intellectual disability were assessed using the Parental Attitude Scale and General Health Questionnaire-28. Results: Overall, mothers of children with intellectual disability were found to have the most negative attitude towards their child. Mothers of children with autism disorder exhibited higher scores on somatic symptoms, anxiety, and social dysfunction when compared with their counterparts with Down syndrome and intellectual disability. Negative attitude was a significant predictor of psychological problems. Conclusion: Parental attitudes and psychological problems would vary among mothers of children with different types of developmental disability. © 2014 Hong Kong College of Psychiatrists.},
note = {cited By 6},
keywords = {Adult, Anxiety, Article, Attitude, Autism, Autism Spectrum Disorders, Children, Comparative Study, Depression, Developmental Disabilities, Developmental Disorders, Down Syndrome, Education, Female, General Health Questionnaire 28, Home Care, Hostility, Human, Intellectual Disability, Intellectual Impairment, Major Clinical Study, Malaysia, Male, Mental Disorders, Mother Child Relation, Mothers, Named Inventories, Parental Attitude, Parental Attitude Scale, Prevalence, Psychological Well Being, Questionnaires, Rating Scale, School Child, Social Disability},
pubstate = {published},
tppubtype = {article}
}