@artikel{Eow2020,
tajuk = {Faktor-faktor yang berkaitan dengan keparahan autisme di kalangan kanak-kanak Malaysia dengan Autism Spectrum Disorder},
pengarang = {S Y Eow dan W Y Gan dan P Y Lim dan H Awang dan Z Mohd Shariff},
url = {https://www.scopus.com/inward/record.uri?eid = 2-s2.0-85081212440&doi = 10.1016% 2fj.ridd.2020.103632&rakan kongsi = 40&md5 = a2814a66b9d649278ea7f764ed7e4125},
doi = {10.1016/j.ridd.2020.103632},
terbitan = {08914222},
tahun = {2020},
tarikh = {2020-01-01},
jurnal = {Penyelidikan Ketidakupayaan Pembangunan},
isi padu = {100},
penerbit = {Elsevier Inc.},
abstrak = {Latar belakang: Kanak-kanak dengan Gangguan Spektrum Autisme (ASD) tahap keparahan gejala yang berlainan boleh menunjukkan pelbagai tingkah laku dan ciri. Terdapat kajian berkaitan pemakanan terhad pada kanak-kanak dengan ASD dengan tahap keparahan yang berbeza di Malaysia. Matlamat: Kajian keratan rentas ini bertujuan untuk mengetahui perkaitan antara faktor sosiodemografi, faktor ibu bapa, dan faktor gaya hidup dengan keparahan autisme pada kanak-kanak dengan ASD. Kaedah dan prosedur: Sejumlah 224 kanak-kanak dengan ASD dimasukkan dalam kajian ini. Ibu mereka melengkapkan borang soal selidik mengenai ciri sosiodemografi, keterukan autisme, gaya keibubapaan, amalan memberi makan ibu bapa, tekanan keibubapaan, tabiat tidur anak dan tingkah laku makan. Hasil dan hasil: Setinggi 78.1 % kanak-kanak dengan ASD menunjukkan tahap keparahan autisme yang tinggi. Regresi linear berganda menunjukkan bahawa status pekerjaan bapa (B = 6.970, 95 % CI = 3.172, 10.768, hlm < 0.001) and perceived child weight (B = 3.338, 95 % CI = 1.350, 5.327},
nota = {dipetik oleh 0},
kata kunci = {Artikel, Autisme, Berat badan, Anak-anak, Kajian Lintas Bahagian, Demografi, Persatuan Penyakit, Keterukan Penyakit, Pekerjaan, Perempuan, Manusia, Gaya hidup, Kajian Klinikal Utama, Malaysia, Orang Malaysia, Lelaki, Ibu bapa, Kanak-kanak Prasekolah, Budak sekolah, Status sosial},
pubstate = {diterbitkan},
tppubtype = {artikel}
}

@artikel{Jaafar2019135,
tajuk = {Parent-report instruments for assessing feeding difficulties in children with neurological impairments: a systematic review},
pengarang = {N H Jaafar and A Othman and N A Majid and S Harith and Z Zabidi-Hussin},
url = {https://www.scopus.com/inward/record.uri?eid=2-s2.0-85052789833&doi=10.1111%2fdmcn.13986&rakan kongsi = 40&md5=d02a2bfcd15a25988b9c23855cd87444},
doi = {10.1111/dmcn.13986},
terbitan = {00121622},
tahun = {2019},
tarikh = {2019-01-01},
jurnal = {Developmental Medicine and Child Neurology},
isi padu = {61},
nombor = {2},
halaman = {135-144},
penerbit = {Blackwell Publishing Ltd},
abstrak = {Aim: This study aimed to review the psychometric properties and clinical application of parent-report instruments that assess feeding difficulties in children with neurological impairments. Kaedah: Papers were identified through five electronic databases based on 15 keywords and were included if they met the following criteria: published in English, described the implementation of parent-report instruments, and included children with neurological impairments (either in the report or a related study population). Keputusan: In total, 1220 relevant abstracts were screened and 22 full-text articles were evaluated. The following six parent-report instruments met the inclusion criteria: (1) Screening Tool of Feeding Problems applied to children, (2) Paediatric Eating Assessment Tool, (3) Paediatric Assessment Scale for Severe Feeding Problems, (4) Montreal Children's Hospital Feeding Scale, (5) Children's Eating Behaviour Inventory, dan (6) Behavioural Paediatric Feeding Assessment Scale (BPFAS). Based on comprehensive psychometric testing and consistently good results, the BPFAS was considered the most valid and reliable instrument. The BPFAS also showed good clinical applicability because it was readily available, required a short administration time, and used a simple scoring system. Interpretation: We reviewed the available parent-report instruments for assessing feeding difficulties in children with neurological impairments. The BPFAS had the best psychometric properties and clinical applicability. What this paper adds: Six parent-report instruments were suitable for assessing feeding in children with neurological impairments. The Behavioural Paediatric Feeding Assessment Scale (BPFAS) has the strongest psychometric properties. The BPFAS also has good clinical applicability. © 2018 Mac Keith Press},
nota = {dipetik oleh 1},
kata kunci = {Assessment of Humans, Autisme, Behavioural Paediatric Feeding Assessment Scale, Caloric Intake, Tingkah Laku Kanak-kanak, Hubungan Ibu Bapa Anak, Childhood Disease, Anak-anak, Children's Eating Behaviour Inventory, Komplikasi, Construct Validity, Content Validity, Criterion Related Validity, Cystic Fibrosis, Gangguan Makan, Enalapril Maleate, Eosinophilic Gastrointestinal Disorder, Esophagus Atresia, Feeding, Feeding and Eating Disorders, Tingkah Laku Makan, Kesukaran Memberi Makan, Pengambilan makanan, Manusia, Nervous System Diseases, Neurologic Disease, Penilaian Pemakanan, Ibu bapa, Pediatric Assessment Scale for Severe Feeding Problem, Pediatric Eating Assessment Tool, Nilai Ramalan, Prasekolah, Kanak-kanak Prasekolah, Jurnal Keutamaan, Prosedur, Psikologi, Psikometrik, Psikometri, Kualiti hidup, Receiver Operating Characteristic, Kaji semula, Sistem Pemarkahan, Self Disclosure, Kepekaan dan Kekhususan, Syndrome CHARGE, Kajian Sistematik, Test Retest Reliability},
pubstate = {diterbitkan},
tppubtype = {artikel}
}

@artikel{Ong2019,
tajuk = {Kepuasan ibu bapa dan persepsi terhadap Kemajuan dalam mempengaruhi Amalan pendekatan kesihatan pelengkap pada kanak-kanak autisme: Tinjauan keratan rentas dari Negeri Sembilan, Malaysia},
pengarang = {J J Ong},
url = {https://www.scopus.com/inward/record.uri?eid=2-s2.0-85071968009&doi = 10.1186% 2fs12906-019-2672-8&rakan kongsi = 40&md5=7357d9aa26c64a321790fee9aae89765},
doi = {10.1186/s12906-019-2672-8},
terbitan = {14726882},
tahun = {2019},
tarikh = {2019-01-01},
jurnal = {Perubatan Komplementari dan Alternatif BMC},
isi padu = {19},
nombor = {1},
penerbit = {BioMed Central Ltd.},
abstrak = {Latar belakang: Penggunaan pendekatan kesihatan pelengkap oleh ibu bapa (TIDAK) untuk kanak-kanak yang mengalami gangguan spektrum autisme (ASD) adalah perkara biasa walaupun terdapat bukti yang tidak pasti tentang manfaatnya. Ibu bapa sering mengamalkan CHA kerana tidak berpuas hati dengan rawatan konvensional. Kajian ini bertujuan untuk mengkaji kepuasan ibu bapa terhadap rawatan ASD dan persepsi mereka terhadap kemajuan dalam perkembangan anak mereka.. Penggunaan CHA oleh ibu bapa dalam kalangan kanak-kanak dengan ASD dan faktor-faktor yang berkaitan juga dinilai. Kaedah: Soal selidik yang ditadbir sendiri telah dilengkapkan oleh 48 ibu bapa yang mempunyai anak ASD di hospital rujukan tertiari tunggal di Malaysia. Analisis korelasi digunakan untuk meneroka perkaitan antara skor kepuasan ibu bapa, persepsi skor kemajuan dan penggunaan CHA. Keputusan: Penggunaan CHA dilaporkan oleh ibu bapa untuk 35.4% kanak-kanak dengan ASD dalam sampel. Ibu bapa yang kurang berpuas hati dengan rawatan konvensional dan ibu bapa yang merasakan kemajuan yang lebih lemah dalam perkembangan anak mereka lebih cenderung menggunakan CHA. Hubungan positif yang kukuh didapati antara kepuasan ibu bapa dengan skor rawatan ASD dan persepsi ibu bapa terhadap skor kemajuan, yang menunjukkan bahawa ibu bapa yang berpuas hati dengan rawatan lebih cenderung untuk melihat kemajuan yang lebih besar dalam perkembangan anak mereka. Peningkatan dalam kemajuan anak amat dihargai oleh ibu bapa dalam tingkah laku anak mereka (85.5%), kemahiran sosial (83.3%) dan kemahiran motor (77.1%). Kesimpulannya: Penggunaan CHA adalah biasa di kalangan kanak-kanak dengan ASD. Ibu bapa lebih cenderung untuk mengamalkan CHA apabila mereka kurang berpuas hati dengan rawatan konvensional dan merasakan kemajuan yang lebih buruk. Kajian berbilang pusat yang lebih besar diperlukan untuk meneroka lebih lanjut amalan CHA dalam kalangan kanak-kanak ASD di seluruh Malaysia. © 2019 Pengarang(s).},
nota = {dipetik oleh 0},
kata kunci = {Remaja, Dewasa, Ubatan alternatif, Autisme, Gangguan Spektrum Autisme, Tingkah Laku Kanak-kanak, Hubungan Ibu Bapa Anak, Anak-anak, Terapi Pelengkap, Kajian Lintas Bahagian, Perempuan, Manusia, Bayi, Malaysia, Lelaki, Pertengahan umur, Ibu bapa, Kepuasan Peribadi, Prasekolah, Kanak-kanak Prasekolah, Psikologi, Soal selidik, Kepuasan hati, Kecekapan Sosial, Kemahiran sosial, Tinjauan, Hasil Rawatan},
pubstate = {diterbitkan},
tppubtype = {artikel}
}

@artikel{Adib2018,
tajuk = {Terjemahan dan pengesahan skala kepuasan ibu bapa versi bahasa melayu (Pss-m) untuk penilaian kepuasan penjaga terhadap perkhidmatan penjagaan kesihatan untuk kanak-kanak yang mengalami gangguan spektrum autisme},
pengarang = {N A N Adib and M I Ibrahim and A A Rahman and R S Bakar and N A Yahaya and S Hussin and W N Arifin},
url = {https://www.scopus.com/inward/record.uri?eid=2-s2.0-85056090545&doi=10.3390/ijerph15112455&rakan kongsi = 40&md5=53650806d46343cc3e95c9b30442f79c},
doi = {10.3390/ijerph15112455},
terbitan = {16617827},
tahun = {2018},
tarikh = {2018-01-01},
jurnal = {Jurnal Antarabangsa Penyelidikan Alam Sekitar dan Kesihatan Awam},
isi padu = {15},
nombor = {11},
penerbit = {MDPI AG},
abstrak = {Latar belakang: Skala Kepuasan Ibu Bapa versi Bahasa Melayu (PSS-M) diperlukan untuk menyiasat faktor-faktor yang menyumbang kepada kepuasan pengasuh Melayu terhadap pengurusan penjagaan kesihatan untuk kanak-kanak yang mengalami gangguan spektrum autisme. (ASD). Matlamat kajian adalah untuk menterjemah dan mengesahkan soal selidik untuk menilai kepuasan penjaga terhadap perkhidmatan penjagaan kesihatan. Kaedah: Kajian keratan rentas telah dijalankan di kalangan 110 penjaga kanak-kanak dengan ASD berumur antara 2 dan 17 tahun yang menerima rawatan di dua pusat jagaan tinggi di Kelantan. Kebenaran untuk menggunakan borang soal selidik PSS versi asal telah diperolehi. Versi Inggeris asal PSS telah diterjemahkan ke dalam versi Bahasa Melayu berikutan 10 langkah yang dicadangkan oleh garis panduan yang ditetapkan. Pra-ujian PSS telah dijalankan dengan 30 penjaga sebelum analisis faktor pengesahan (CFA) ditubuhkan menggunakan 110 penjaga. Mereka diminta menilai kefahaman mereka terhadap soal selidik. Soal selidik satu dimensi terdiri daripada 11 barang, termasuk sikap kakitangan, ketersediaan kakitangan, sokongan, dan suka menolong. Skala Likert 5 mata memberikan penilaian daripada 1 (sangat tidak setuju) ke 5 (sangat bersetuju). Analisis faktor pengesahan dilakukan menggunakan penganggar kemungkinan maksimum yang teguh. Keputusan: Analisis menunjukkan data kesesuaian model dengan kebolehpercayaan yang baik. Kesimpulannya: PSS-M menunjukkan kecergasan model keseluruhan berdasarkan indeks tertentu, dengan kesahan konstruk yang baik dan kebolehpercayaan mutlak yang sangat baik untuk menentukan tahap kepuasan penjaga kanak-kanak dengan ASD berkenaan dengan perkhidmatan penjagaan kesihatan. © 2018, MDPI AG. Hak cipta terpelihara.},
nota = {dipetik oleh 2},
kata kunci = {Dewasa, Artikel, Autisme, Gangguan Spektrum Autisme, Pengasuh, Penjagaan Kanak-kanak, Hubungan Ibu Bapa Anak, Anak-anak, Kajian Lintas Bahagian, Analisis Faktor, Perempuan, Garis panduan, Sikap Kakitangan Kesihatan, Perkhidmatan kesihatan, Pekerja kesihatan, Manusia, Kelantan, Fungsi Kemungkinan, Skala Likert, Malaysia, Lelaki, Analisis Kemungkinan Maksimum, Kesihatan mental, Perkhidmatan Kesihatan Mental, Ibu bapa, Skala Kepuasan Ibu Bapa Versi Bahasa Melayu, Kepuasan Peribadi, Garis Panduan Amalan, Skala Penarafan Psikologi, Psikologi, Penerbitan, Soal selidik, Kebolehulangan, Kebolehulangan Keputusan, Kepuasan hati, Model Statistik, Statistik, Tinjauan, Pusat Jagaan Tertiari, Terjemahan, Kajian Pengesahan, West Malaysia},
pubstate = {diterbitkan},
tppubtype = {artikel}
}

@artikel{JoginderSingh2017110,
tajuk = {Reflections of Malaysian parents of children with developmental disabilities on their experiences with AAC},
pengarang = {S Joginder Singh and N H Hussein and R Mustaffa Kamal and F H Hassan},
url = {https://www.scopus.com/inward/record.uri?eid=2-s2.0-85017131769&doi=10.1080%2f07434618.2017.1309457&rakan kongsi = 40&md5=067c39e0c318e76caff96b29bb4dbb21},
doi = {10.1080/07434618.2017.1309457},
terbitan = {07434618},
tahun = {2017},
tarikh = {2017-01-01},
jurnal = {AAC: Augmentative and Alternative Communication},
isi padu = {33},
nombor = {2},
halaman = {110-120},
penerbit = {Taylor and Francis Ltd},
abstrak = {Parents play an important role in the successful implementation of AAC. Previous research has indicated that parents in different countries have varying perceptions about the use of AAC and face different challenges in its implementation. Sehingga kini, there is limited information about the use of AAC by children in Malaysia or parents’ views about its use. The aim of this study was to explore Malaysian parents’ perception of AAC and their experience when supporting their children who use AAC. Untuk kajian ini, 12 parents of children with autism spectrum disorder and cerebral palsy were involved in semi-structured individual interviews. Qualitative content analysis was used to analyze interview data. Following analysis, three themes were identified: (a) impact of the use of AAC, (b) challenges faced, dan (c) hopes and expectations. Participants reported that the use of AAC had a positive impact on their children, but that they faced challenges related to the child, the settings, and the system itself, as well as a lack of time and support. Findings from this study provide an insight for Malaysian speech therapists about the challenges faced by parents when supporting their children who use AAC, and how important it is to overcome these challenges to ensure successful implementation of AAC. © 2017 International Society for Augmentative and Alternative Communication.},
nota = {dipetik oleh 10},
kata kunci = {Dewasa, Sikap Terhadap Kesihatan, Augmentative and Alternative Communication, Anak-anak, Communication Aid, Communication Aids for Disabled, Gangguan Komunikasi, Communication Disorders, Ketidakupayaan Perkembangan, Gangguan Perkembangan, Disabilities, Penyakit, Keluarga, Perempuan, Manusia, Human Rehabilitation Engineering, Malaysia, Lelaki, Pertengahan umur, Ibu bapa, Prasekolah, Kanak-kanak Prasekolah, Qualitative Research},
pubstate = {diterbitkan},
tppubtype = {artikel}
}

@artikel{Alwi20155,
tajuk = {Multidisciplinary Parent Education for Caregivers of Children With Autism Spectrum Disorders (ASD): Implications for Clinical Practice},
pengarang = {N Alwi and D Harun and L Jh},
url = {https://www.scopus.com/inward/record.uri?eid=2-s2.0-84921463937&doi=10.1016%2fj.apnu.2014.09.010&rakan kongsi = 40&md5=afc618a09a89f9461c587ab56a96559a},
doi = {10.1016/j.apnu.2014.09.010},
terbitan = {08839417},
tahun = {2015},
tarikh = {2015-01-01},
jurnal = {Archives of Psychiatric Nursing},
isi padu = {29},
nombor = {1},
halaman = {5},
penerbit = {W.B. Saunders},
nota = {dipetik oleh 0},
kata kunci = {Autisme, Gangguan Spektrum Autisme, Pengasuh, Gangguan Perkembangan Kanak-kanak, Anak-anak, Manusia, Ibu bapa, Meresap},
pubstate = {diterbitkan},
tppubtype = {artikel}
}

@artikel{Bhagat20157,
tajuk = {Parent’s self-efficacy, emotionality, and intellectual ability impacting the intervention of autism spectrum disorders: A review proposed model for appraisal of intervention},
pengarang = {V Bhagat and J Jayaraj and M Haque},
url = {https://www.scopus.com/inward/record.uri?eid=2-s2.0-84946575464&rakan kongsi = 40&md5=7384d5557b767097e456dee7c79128f7},
terbitan = {09751491},
tahun = {2015},
tarikh = {2015-01-01},
jurnal = {International Journal of Pharmacy and Pharmaceutical Sciences},
isi padu = {7},
nombor = {11},
halaman = {7-12},
penerbit = {International Journal of Pharmacy and Pharmaceutical Science},
abstrak = {Gangguan spektrum autisme (ASD) may affect all domains of a child’s life. Sesungguhnya, it impacts not only the child but also parents and siblings, causing disturbances in the family. The experience of parents with an autism spectrum disorder can be devastating; they have a demanding need to cope with complex situations in their lives. The presence of pervasive and severe deficits in children with ASD increases the adjusting demands of parents in their life situations, thus, nudging them into distress which in turn incapacitate them and lowers their efficiency to deal with these situations thereby reducing their self-efficacy. These parents are found with disturbances in emotional and intellectual components of their personalities. They end up being shattered in their interpersonal relationship and family life. Sesungguhnya, these aspects of parental distress rank lower in position and the focus rests on the treatment of ASD. Oleh itu, the management of ASD incapacitating the parents of the deficit children to reach their fullest abilities remains questionable. Oleh itu, the objectives of this study are a) to examine the impact of emotionality, intellectual ability and self-efficacy of the intervention of autism spectrum disorder. b) To propose a new intervention model for ASD incorporating self-efficacy, emotional and mental ability c) To suggest the integration of this new model with the current intervention regimens to ensure better efficacy. This study, based on past evidence has keenly, examined the correlation of intellectual ability, emotionality and self-efficacy with the intervention of autism spectrum disorder. The results reveal that emotional and intellectual disturbances and impaired self-efficacy in the parents of children with ASD have an adverse impact on the intervention of ASD. A new model of intervention for ASD encompassing the above-mentioned essential components of parents’ personality has been proposed, and its integration with the existing treatment regimens has been suggested to reap an improved outcome. The study concludes by observing the fact that considerable improvement in the diagnosed child may not ameliorate the parent and family distress already present, especially at the time and expense of intervention can be even more detrimental to the overall personality of the parents. The new proposed model of intervention can pave the way for further research in this regard. © 2015, International Journal of Pharmacy and Pharmaceutical Science. Hak cipta terpelihara.},
nota = {dipetik oleh 3},
kata kunci = {Keresahan, Autisme, Pengasuh, Tingkah Laku Kanak-kanak, Hubungan Ibu Bapa Anak, Kognisi, Tingkah Laku Menghadapi, Distress Syndrome, Emosi, Emotionality, Manusia, Intelligence, Mental Capacity, Tekanan Ibu Bapa, Ibu bapa, Fenotip, Kaji semula, Konsep Kendiri},
pubstate = {diterbitkan},
tppubtype = {artikel}
}

@artikel{MohdRoffeei2015375,
tajuk = {Seeking social support on Facebook for children with Autism Spectrum Disorders (ASDs)},
pengarang = {S H Mohd Roffeei and N Abdullah and S K R Basar},
url = {https://www.scopus.com/inward/record.uri?eid=2-s2.0-84924517643&doi=10.1016%2fj.ijmedinf.2015.01.015&rakan kongsi = 40&md5=7296825093cbf87388b5b65023e59371},
doi = {10.1016/j.ijmedinf.2015.01.015},
terbitan = {13865056},
tahun = {2015},
tarikh = {2015-01-01},
jurnal = {International Journal of Medical Informatics},
isi padu = {84},
nombor = {5},
halaman = {375-385},
penerbit = {Elsevier Ireland Ltd},
abstrak = {Tujuan: This study examined the types of social support messages exchanged between parents and/or caregivers of children with Autism Spectrum Disorders (ASDs) who communicate via Facebook (FB); it studies two autism support groups: Autism Malaysia (PAGI) and Autism Children Club (ACA). Kaedah: Sejumlah 3637 messages including both postings (381) and comments (3256) were gathered from August to November 2013. The study employed a deductive content-analysis approach. The qualitative data were analyzed for social support themes adapted from the Social Support Behavior Code (SSBC). Before collecting the data, email was sent to the FB groups' moderators to gain formal consent from the members. Result: The finding indicated that the highest percentage of messages offered dealt with Informational support (30.7%) followed by Emotional support (27.8%). Network and Esteem support messages were responsible for 20.97% dan 20.2%, masing-masing. Tangible Assistance was the least frequent category (0.4%). A majority of these messages discussed and addressed challenges and difficulties associated with caring and raising ASD children, as well as issues such as children's social lives and self-care routines. Kesimpulannya: Understandings of how FB is used to seek social support could impact supporting and maintaining effective communication among parents and/or caregivers of children with ASDs. This information could also improve approaches used by health professionals in developing, improving and evaluating social support systems for parents/caregivers. © 2015 Elsevier Ireland Ltd.},
nota = {dipetik oleh 43},
kata kunci = {Artikel, ASD, Autisme, Gangguan Spektrum Autisme, Pengasuh, Anak-anak, Consumer Health Information, Content Analysis, Penyakit, E-mail, Facebook, Keluarga, Friendship, Manusia, Internet, Ibu bapa, Patient Referral, Jurnal Keutamaan, Psikologi, Analisis Kualitatif, Self Esteem, Media sosial, Rangkaian sosial, Sokongan Sosial, Statistik, Support Group, Telemedicine, Utilization},
pubstate = {diterbitkan},
tppubtype = {artikel}
}

@artikel{Alwi2014369,
tajuk = {Psychological distress among parents having offspring with autism spectrum disorder (ASD) - A clinical view point},
pengarang = {N Alwi and D Harun and L J Henry},
url = {https://www.scopus.com/inward/record.uri?eid=2-s2.0-84927968335&doi=10.1016%2fj.dhjo.2014.04.008&rakan kongsi = 40&md5=a07c401e41bcac2ae5884cd4e8b8db30},
doi = {10.1016/j.dhjo.2014.04.008},
terbitan = {19366574},
tahun = {2014},
tarikh = {2014-01-01},
jurnal = {Disability and Health Journal},
isi padu = {7},
nombor = {4},
halaman = {369-370},
penerbit = {Elsevier Inc.},
nota = {dipetik oleh 1},
kata kunci = {Autisme, Gangguan Spektrum Autisme, Pengasuh, Hubungan Ibu Bapa Anak, Tingkah Laku Menghadapi, Counseling, Kemurungan, Disabled Person, Disabled Persons, Distress Syndrome, Keluarga, Manusia, Surat, Marriage, Tekanan Mental, Tekanan Ibu Bapa, Ibu bapa, Jurnal Keutamaan, Progeny, Psikologi, Psychological Well Being, Psikologi, Single Parent, Status sosial, Tekanan, Kesejahteraan},
pubstate = {diterbitkan},
tppubtype = {artikel}
}

@artikel{Clark201245,
tajuk = {Pandangan awal mengenai kualiti hidup keluarga Malaysia yang merangkumi kanak-kanak kurang upaya},
pengarang = {M Clark dan R Brown dan R Karrapaya},
url = {https://www.scopus.com/inward/record.uri?eid = 2-s2.0-83855165819&doi=10.1111/j.1365-2788.2011.01408.x&rakan kongsi = 40&md5 = 4822406179501d1b0b93c5374e383637},
doi = {10.1111/j.1365-2788.2011.01408.x},
terbitan = {09642633},
tahun = {2012},
tarikh = {2012-01-01},
jurnal = {Jurnal Penyelidikan Kecacatan Intelektual},
isi padu = {56},
nombor = {1},
halaman = {45-60},
abstrak = {Latar Belakang Walaupun terdapat banyak literatur dalam kualiti hidup keluarga yang merangkumi anak-anak kurang upaya, majoriti penyelidikan telah dilakukan di negara-negara barat. Kajian ini memberikan penerokaan awal mengenai kualiti hidup keluarga Malaysia yang merangkumi anak-anak yang kurang upaya perkembangan / intelektual. Dinamika yang mencirikan masyarakat Malaysia digambarkan sebagai perkembangan dalam dasar sosial dan penyediaan perkhidmatan yang menyokong orang kurang upaya dan keluarga mereka. Data Kaedah Soal Selidik dikumpulkan menggunakan Tinjauan Kualiti Hidup Keluarga - Versi pendek. Anggota 52 keluarga yang merangkumi satu atau dua kanak-kanak kurang upaya ditemu ramah. Respons mereka memberikan persepsi mereka dalam enam dimensi kualiti hidup keluarga di sembilan domain kehidupan yang dinilai. Hasil Dapatan menunjukkan corak penilaian 'penting' yang dirasakan kuat pada setiap domain kehidupan berbanding dengan penilaian min untuk dimensi kualiti hidup keluarga yang lain. Beberapa dimensi kualiti hidup keluarga, khususnya 'peluang', ínitiative 'dan áttainment', menunjukkan hubungan yang sangat kuat antara satu sama lain. Keseluruhan cara kepuasan dengan dan pencapaian kualiti hidup keluarga serta penilaian global terhadap kualiti hidup dan kepuasan semua menunjukkan hubungan yang signifikan, walaupun setiap korelasi ini menyumbang kurang daripada 50% dari varians biasa. Kesimpulan Peringkat kepentingan dapat dilihat sebagai faktor penentu dari segi kualiti hidup, dan memainkan peranan penting dalam menyokong pencapaian, dan kepuasan dengan, kualiti hidup keluarga, menanggung peluang, inisiatif dan kestabilan mencukupi. Keperluan untuk sampel yang lebih luas termasuk keluarga yang tidak menerima perkhidmatan diperhatikan. Soalan penyelidikan masa depan berdasarkan hasil kajian semasa dan beberapa dinamika yang mempengaruhi masyarakat Malaysia juga dicadangkan. © 2011 Penulis. Jurnal Penyelidikan Kecacatan Intelektual © 2011 Blackwell Publishing Ltd.},
nota = {dipetik oleh 16},
kata kunci = {Remaja, Dewasa, Artikel, Autisme, Pengasuh, Cerebral Palsy, Anak-anak, Kos Penyakit, Perbandingan Merentas Budaya, Ketidakupayaan Perkembangan, Gangguan Perkembangan, Kanak-kanak Kurang Upaya, Sindrom Down, Keluarga, Kesihatan Keluarga, Perempuan, Penjagaan Kesihatan, Penyampaian Penjagaan Kesihatan, Tinjauan Kesihatan, Manusia, Kecacatan Intelektual, Kemerosotan Intelektual, Kepuasan Hidup, Malaysia, Lelaki, Ibu bapa, Dasar, Prasekolah, Kanak-kanak Prasekolah, Psikometrik, Kualiti hidup, Soal selidik, Budak sekolah, Sokongan Sosial, Faktor Sosioekonomi},
pubstate = {diterbitkan},
tppubtype = {artikel}
}