Senarai Penerbitan
Terdapat sebilangan besar penyelidikan berkaitan autisme yang boleh dijumpai di Malaysia yang umumnya menumpukan pada ASD, gangguan pembelajaran, alat bantu komunikasi, terapi dan banyak lagi. Senarai penerbitan disediakan di bawah:
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2016 |
Ooi, K L; Ong, Y S; Yakub, S A; Khan, T M Meta-sintesis untuk mengasuh anak dengan autisme Artikel Jurnal Penyakit dan Rawatan Neuropsychiatrik, 12 , hlm. 745-762, 2016, ISSN: 11766328, (dipetik oleh 44). Abstrak | Pautan | BibTeX | Tag: Adaptasi, Artikel, Sikap Terhadap Kesihatan, Sikap Penyakit Mental, Autisme, Penjagaan Kanak-kanak, Hubungan Ibu Bapa Anak, Zaman kanak-kanak, Keluarga, Penjagaan Berpusatkan Keluarga, Penjagaan Kesihatan, Penyampaian Penjagaan Kesihatan, Pendidikan Kesihatan, Manusia, Sikap Ibu Bapa, Tekanan Ibu Bapa, Kualiti hidup, Aspek Sosial, Kajian Sistematik, Kesejahteraan @artikel{Ooi2016745, tajuk = {Meta-sintesis untuk mengasuh anak dengan autisme}, pengarang = {K L Ooi dan Y S Ong dan S A Jacob dan T M Khan}, url = {https://www.scopus.com/inward/record.uri?eid = 2-s2.0-84962625349&doi=10.2147/NDT.S100634&rakan kongsi = 40&md5 = 48b432dc361f8f3c373ed3b481e01e4c}, doi = {10.2147/NDT.S100634}, terbitan = {11766328}, tahun = {2016}, tarikh = {2016-01-01}, jurnal = {Penyakit dan Rawatan Neuropsychiatrik}, isi padu = {12}, halaman = {745-762}, penerbit = {Dove Medical Press Ltd.}, abstrak = {Latar belakang: Sifat autisme seumur hidup pada seorang anak mempunyai implikasi yang mendalam terhadap ibu bapa kerana mereka menghadapi pelbagai cabaran dan akibat emosi dalam membesarkan anak. Tujuan meta-sintesis ini adalah untuk meneroka perspektif ibu bapa dalam membesarkan anak dengan autisme pada zaman kanak-kanak untuk mendapatkan gambaran mengenai penyesuaian dan kepercayaan ibu bapa terhadap autisme, pengalaman keluarga dan sosial mereka, serta persepsi mereka terhadap perkhidmatan kesihatan dan pendidikan. Kaedah: Pencarian sistematik enam pangkalan data (PubMed, ASAS, PsikInfo, Daftar Pusat Percubaan Terkawal Cochrane, Pangkalan Data Cochrane dari Ulasan Sistematik, dan Pangkalan Data Abstrak Ulasan Kesan [BERANI]) dijalankan dari awal hingga September 30, 2014. Artikel Inggeris penuh teks kajian kualitatif yang menggambarkan persepsi ibu bapa berkaitan dengan penjagaan anak-anak yang lebih muda dari 12 berumur tahun dan didiagnosis dengan gangguan autisme sahaja. Keputusan: Sejumlah 50 artikel yang layak dinilai dan dianalisis, mengenal pasti empat tema teras merangkumi semua pemikiran, emosi, dan pengalaman yang biasa dinyatakan oleh ibu bapa: 1) Ibu Bapa, 2) Kesan kepada Keluarga, 3) Impak sosial, dan 4) Perkhidmatan Kesihatan dan Pendidikan. Hasil kajian mendapati ibu bapa yang mempunyai anak dengan autisme mengalami pelbagai cabaran dalam aspek penjagaan yang berbeza, memberi kesan kepada tekanan dan penyesuaian ibu bapa. Kesimpulannya: Penyediaan penjagaan kesihatan harus berpusatkan keluarga, menangani dan menyokong keperluan seisi keluarga dan bukan hanya anak yang terkena, untuk memastikan kesejahteraan dan kualiti hidup keluarga dalam menghadapi diagnosis autisme. © 2016 Ooi et al.}, nota = {dipetik oleh 44}, kata kunci = {Adaptasi, Artikel, Sikap Terhadap Kesihatan, Sikap Penyakit Mental, Autisme, Penjagaan Kanak-kanak, Hubungan Ibu Bapa Anak, Zaman kanak-kanak, Keluarga, Penjagaan Berpusatkan Keluarga, Penjagaan Kesihatan, Penyampaian Penjagaan Kesihatan, Pendidikan Kesihatan, Manusia, Sikap Ibu Bapa, Tekanan Ibu Bapa, Kualiti hidup, Aspek Sosial, Kajian Sistematik, Kesejahteraan}, pubstate = {diterbitkan}, tppubtype = {artikel} } Latar belakang: Sifat autisme seumur hidup pada seorang anak mempunyai implikasi yang mendalam terhadap ibu bapa kerana mereka menghadapi pelbagai cabaran dan akibat emosi dalam membesarkan anak. Tujuan meta-sintesis ini adalah untuk meneroka perspektif ibu bapa dalam membesarkan anak dengan autisme pada zaman kanak-kanak untuk mendapatkan gambaran mengenai penyesuaian dan kepercayaan ibu bapa terhadap autisme, pengalaman keluarga dan sosial mereka, serta persepsi mereka terhadap perkhidmatan kesihatan dan pendidikan. Kaedah: Pencarian sistematik enam pangkalan data (PubMed, ASAS, PsikInfo, Daftar Pusat Percubaan Terkawal Cochrane, Pangkalan Data Cochrane dari Ulasan Sistematik, dan Pangkalan Data Abstrak Ulasan Kesan [BERANI]) dijalankan dari awal hingga September 30, 2014. Artikel Inggeris penuh teks kajian kualitatif yang menggambarkan persepsi ibu bapa berkaitan dengan penjagaan anak-anak yang lebih muda dari 12 berumur tahun dan didiagnosis dengan gangguan autisme sahaja. Keputusan: Sejumlah 50 artikel yang layak dinilai dan dianalisis, mengenal pasti empat tema teras merangkumi semua pemikiran, emosi, dan pengalaman yang biasa dinyatakan oleh ibu bapa: 1) Ibu Bapa, 2) Kesan kepada Keluarga, 3) Impak sosial, dan 4) Perkhidmatan Kesihatan dan Pendidikan. Hasil kajian mendapati ibu bapa yang mempunyai anak dengan autisme mengalami pelbagai cabaran dalam aspek penjagaan yang berbeza, memberi kesan kepada tekanan dan penyesuaian ibu bapa. Kesimpulannya: Penyediaan penjagaan kesihatan harus berpusatkan keluarga, menangani dan menyokong keperluan seisi keluarga dan bukan hanya anak yang terkena, untuk memastikan kesejahteraan dan kualiti hidup keluarga dalam menghadapi diagnosis autisme. © 2016 Ooi et al. |
Bhagat, V; Mat, Khairi Che H J; Husain, R; Haque, M International Journal of Pharmaceutical Sciences Review and Research, 36 (1), hlm. 54-62, 2016, ISSN: 0976044X, (dipetik oleh 0). Abstrak | Pautan | BibTeX | Tag: Autisme, Anak-anak, Keterukan Penyakit, Emosi, Emotionality, Amalan Berasaskan Bukti, Manusia, Perhubungan Manusia, Intervention Study, Negative Emotionality, Parent Counseling, Sikap Ibu Bapa, Parenting Education, Personality Assessment, Kaji semula, Status sosial, Tekanan @artikel{Bhagat201654, tajuk = {Parent’s negative emotionality impacting parenting and involvement in the intervention of their child with autism spectrum disorder: A review proposed the new model for intervention}, pengarang = {V Bhagat and H J Khairi Che Mat and R Husain and M Haque}, url = {https://www.scopus.com/inward/record.uri?eid=2-s2.0-84957597820&rakan kongsi = 40&md5=40212e84a1b6be6ade2617d5c9df29a9}, terbitan = {0976044X}, tahun = {2016}, tarikh = {2016-01-01}, jurnal = {International Journal of Pharmaceutical Sciences Review and Research}, isi padu = {36}, nombor = {1}, halaman = {54-62}, penerbit = {Global Research Online}, abstrak = {Raising a child with an autism spectrum disorder (ASD) is a challenging for their parents. Child’s life with this disease is severely affected. Sesungguhnya, it impacts not only the child, but also parents and siblings, causing disturbances in the family. The experience of parents with an autism spectrum disorder can be distressing; they have a critical need to cope with complex situations in their lives. The presence of pervasive and severe deficits in children with ASD increases the adjusting demands of parents in their life situations, this in turn distress them deliberately and further restrict them in the ways of child rearing and to give the best of themselves. These parents are found with negative emotionality in their personality component. They end up being shattered in their interpersonal relationship and family life. Sesungguhnya, their negative emotions disturb their focus on the treatment of their ASD child. Oleh itu, the management of ASD child incapacitates their parents to bring out the best. Oleh itu, there is a need for intervention of ASD with emphasis on negative emotions of these parents and affecting the parental efficacy. Walau bagaimanapun, it must also be kept in mind that the improvement in the diagnosed ASD child, especially as the time and expense spent on intervention can be even more detrimental to the parents, especially with their emotional component of their personality. This proposed a new model of intervention incorporating assessment and management of parental emotionality as a part of the intervention. Further aiming at integrating this model into the current regulated system of intervention and can be a source for directing the alternative platform for further research in this regard. © 2016, Global Research Online. Hak cipta terpelihara.}, nota = {dipetik oleh 0}, kata kunci = {Autisme, Anak-anak, Keterukan Penyakit, Emosi, Emotionality, Amalan Berasaskan Bukti, Manusia, Perhubungan Manusia, Intervention Study, Negative Emotionality, Parent Counseling, Sikap Ibu Bapa, Parenting Education, Personality Assessment, Kaji semula, Status sosial, Tekanan}, pubstate = {diterbitkan}, tppubtype = {artikel} } Raising a child with an autism spectrum disorder (ASD) is a challenging for their parents. Child’s life with this disease is severely affected. Sesungguhnya, it impacts not only the child, but also parents and siblings, causing disturbances in the family. The experience of parents with an autism spectrum disorder can be distressing; they have a critical need to cope with complex situations in their lives. The presence of pervasive and severe deficits in children with ASD increases the adjusting demands of parents in their life situations, this in turn distress them deliberately and further restrict them in the ways of child rearing and to give the best of themselves. These parents are found with negative emotionality in their personality component. They end up being shattered in their interpersonal relationship and family life. Sesungguhnya, their negative emotions disturb their focus on the treatment of their ASD child. Oleh itu, the management of ASD child incapacitates their parents to bring out the best. Oleh itu, there is a need for intervention of ASD with emphasis on negative emotions of these parents and affecting the parental efficacy. Walau bagaimanapun, it must also be kept in mind that the improvement in the diagnosed ASD child, especially as the time and expense spent on intervention can be even more detrimental to the parents, especially with their emotional component of their personality. This proposed a new model of intervention incorporating assessment and management of parental emotionality as a part of the intervention. Further aiming at integrating this model into the current regulated system of intervention and can be a source for directing the alternative platform for further research in this regard. © 2016, Global Research Online. Hak cipta terpelihara. |
2015 |
Bhagat, V; Simbak, Bin N; Haque, M Journal of Young Pharmacists, 7 (4), hlm. 403-414, 2015, ISSN: 09751483, (dipetik oleh 0). Abstrak | Pautan | BibTeX | Tag: Autisme, Tingkah Laku Menghadapi, Membuat keputusan, Keterukan Penyakit, Economic Aspect, Emosi, Emotionality, Experience, Manusia, Perhubungan Manusia, Intervention Study, Sikap Ibu Bapa, Tekanan Ibu Bapa, Jurnal Keutamaan, Psychological Well Being, Kaji semula, Kepuasan hati, Kelakuan Sosial, Perancangan strategik @artikel{Bhagat2015403, tajuk = {The peripheral focus on the psychological parameters of parents of autistic children in the intervention methods: A review and recommending the strategy, focusing psychological parameters of parents of autistic children in intervention methods}, pengarang = {V Bhagat and N Bin Simbak and M Haque}, url = {https://www.scopus.com/inward/record.uri?eid=2-s2.0-84959853109&doi=10.5530%2fjyp.2015.4s.1&rakan kongsi = 40&md5=ed5b5faede6650d1249a902d7201ed43}, doi = {10.5530/jyp.2015.4s.1}, terbitan = {09751483}, tahun = {2015}, tarikh = {2015-01-01}, jurnal = {Journal of Young Pharmacists}, isi padu = {7}, nombor = {4}, halaman = {403-414}, penerbit = {EManuscript Services}, abstrak = {The experience of parents with an Autism Spectrum Disorders (ASD) can be devastating. Parents and families have to cope with the compound, demanding situation in their life. The presence of pervasive and severe deficits in children with ASD increases the adjusting demands of parent's in their life situations. Those coping with life complexity with the parents of ASD nudge them into stress later into distress slowly incapacitates them that of their efficiency to deal with this situation. These parents are found with disturbances in their psychological parameters such as social, sexual, economic, and emotional. Perhaps this shatters them from their interpersonal relationship and family life. Sesungguhnya, these aspects of parental distress stand lower in position, and the focus goes with the treatment of ASD. Oleh itu, the management of ASD by these parents to their deficit child capacitating to reach their fullest abilities remains questionable. Oleh itu, there is a need for intervention of autistic children with a peripheral focus on psychological parameters of parents of ASD. This review study focuses on division of attention required for the treatment of ASD towards the child with autism and the parents who manage them.}, nota = {dipetik oleh 0}, kata kunci = {Autisme, Tingkah Laku Menghadapi, Membuat keputusan, Keterukan Penyakit, Economic Aspect, Emosi, Emotionality, Experience, Manusia, Perhubungan Manusia, Intervention Study, Sikap Ibu Bapa, Tekanan Ibu Bapa, Jurnal Keutamaan, Psychological Well Being, Kaji semula, Kepuasan hati, Kelakuan Sosial, Perancangan strategik}, pubstate = {diterbitkan}, tppubtype = {artikel} } The experience of parents with an Autism Spectrum Disorders (ASD) can be devastating. Parents and families have to cope with the compound, demanding situation in their life. The presence of pervasive and severe deficits in children with ASD increases the adjusting demands of parent's in their life situations. Those coping with life complexity with the parents of ASD nudge them into stress later into distress slowly incapacitates them that of their efficiency to deal with this situation. These parents are found with disturbances in their psychological parameters such as social, sexual, economic, and emotional. Perhaps this shatters them from their interpersonal relationship and family life. Sesungguhnya, these aspects of parental distress stand lower in position, and the focus goes with the treatment of ASD. Oleh itu, the management of ASD by these parents to their deficit child capacitating to reach their fullest abilities remains questionable. Oleh itu, there is a need for intervention of autistic children with a peripheral focus on psychological parameters of parents of ASD. This review study focuses on division of attention required for the treatment of ASD towards the child with autism and the parents who manage them. |
Siah, P -C; Tan, S -H Sense of coherence and WHOQoL among parents of children with ASD in Malaysia Artikel Jurnal International Journal on Disability and Human Development, 14 (1), hlm. 59-66, 2015, ISSN: 21911231, (dipetik oleh 2). Abstrak | Pautan | BibTeX | Tag: Dewasa, umur, Artikel, Autisme, Anak-anak, Kefahaman, Pendidikan, Pekerjaan, Faktor Persekitaran, Perempuan, Jantina, Han Chinese, Health, Housewife, Manusia, Income, Orang India, Kajian Klinikal Utama, Malay, Malaysia, Lelaki, Marriage, Kesihatan mental, Sikap Ibu Bapa, Pensioner, Aspek Psikologi, Kualiti hidup, Religion, Sampling, Sense of Coherence, Interaksi Sosial @artikel{Siah201559, tajuk = {Sense of coherence and WHOQoL among parents of children with ASD in Malaysia}, pengarang = {P -C Siah and S -H Tan}, url = {https://www.scopus.com/inward/record.uri?eid=2-s2.0-84922567900&doi=10.1515%2fijdhd-2013-0039&rakan kongsi = 40&md5=a909c24c26550aebe2c8922063d70001}, doi = {10.1515/ijdhd-2013-0039}, terbitan = {21911231}, tahun = {2015}, tarikh = {2015-01-01}, jurnal = {International Journal on Disability and Human Development}, isi padu = {14}, nombor = {1}, halaman = {59-66}, penerbit = {Walter de Gruyter GmbH}, abstrak = {Studies have shown that most parents of children with autism spectrum disorder (ASD) face more stress and have a poorer quality of life (QoL) than other parents. Walaupun begitu, there are still some parents of children with ASD who are able to maintain or even improve their QoL. This study is aimed to explore the relationship between SoC and WHOQoL among parents of children with ASD. Kaedah: Sejumlah 96 parents of children with ASD were invited to participate using a purposive sampling method. Keputusan: The results suggested that participants in the high SoC group had better QoL in the four domains than those in the low SoC group. More importantly, not all types of SoC were relevant to QoL. Comprehensibility was relevant to all the four QoL domains and manageability was relevant to physical and psychological health, while meaningfulness was not relevant to any of the QoL domains. Kesimpulannya: NGOs may improve the QoL of these parents by providing trainings to improve their SOC, especially in comprehensibility and manageability. © 2015 by De Gruyter.}, nota = {dipetik oleh 2}, kata kunci = {Dewasa, umur, Artikel, Autisme, Anak-anak, Kefahaman, Pendidikan, Pekerjaan, Faktor Persekitaran, Perempuan, Jantina, Han Chinese, Health, Housewife, Manusia, Income, Orang India, Kajian Klinikal Utama, Malay, Malaysia, Lelaki, Marriage, Kesihatan mental, Sikap Ibu Bapa, Pensioner, Aspek Psikologi, Kualiti hidup, Religion, Sampling, Sense of Coherence, Interaksi Sosial}, pubstate = {diterbitkan}, tppubtype = {artikel} } Studies have shown that most parents of children with autism spectrum disorder (ASD) face more stress and have a poorer quality of life (QoL) than other parents. Walaupun begitu, there are still some parents of children with ASD who are able to maintain or even improve their QoL. This study is aimed to explore the relationship between SoC and WHOQoL among parents of children with ASD. Kaedah: Sejumlah 96 parents of children with ASD were invited to participate using a purposive sampling method. Keputusan: The results suggested that participants in the high SoC group had better QoL in the four domains than those in the low SoC group. More importantly, not all types of SoC were relevant to QoL. Comprehensibility was relevant to all the four QoL domains and manageability was relevant to physical and psychological health, while meaningfulness was not relevant to any of the QoL domains. Kesimpulannya: NGOs may improve the QoL of these parents by providing trainings to improve their SOC, especially in comprehensibility and manageability. © 2015 by De Gruyter. |
2014 |
Shobana, M; Saravanan, C Comparative study on attitudes and psychological problems of mothers towards their children with developmental disability Artikel Jurnal East Asian Archives of Psychiatry, 24 (1), hlm. 16-22, 2014, ISSN: 20789947, (dipetik oleh 6). Abstrak | Pautan | BibTeX | Tag: Dewasa, Keresahan, Artikel, Attitude, Autisme, Gangguan Spektrum Autisme, Anak-anak, Kajian Perbandingan, Kemurungan, Ketidakupayaan Perkembangan, Gangguan Perkembangan, Sindrom Down, Pendidikan, Perempuan, General Health Questionnaire 28, Home Care, Hostility, Manusia, Kecacatan Intelektual, Kemerosotan Intelektual, Kajian Klinikal Utama, Malaysia, Lelaki, Gangguan Mental, Mother Child Relation, Mothers, Named Inventories, Sikap Ibu Bapa, Parental Attitude Scale, Kelaziman, Psychological Well Being, Soal selidik, Skala penilaian, Budak sekolah, Social Disability @artikel{Shobana201416, tajuk = {Comparative study on attitudes and psychological problems of mothers towards their children with developmental disability}, pengarang = {M Shobana and C Saravanan}, url = {https://www.scopus.com/inward/record.uri?eid=2-s2.0-84898619897&rakan kongsi = 40&md5=e877e03b868d1a11ed8f859a33057d5d}, terbitan = {20789947}, tahun = {2014}, tarikh = {2014-01-01}, jurnal = {East Asian Archives of Psychiatry}, isi padu = {24}, nombor = {1}, halaman = {16-22}, penerbit = {Hong Kong Academy of Medicine Press}, abstrak = {Objektif: Parents' positive attitudes and psychological wellbeing play an important role in the development of the children with developmental disability. This study aimed to measure the prevalence of psychological problems among mothers of children with autism disorder, intellectual disability, and Down syndrome. The second aim was to assess the differences in mothers' attitudes and psychological problems among their children with intellectual disability, autism disorder, and Down syndrome. The third aim was to identify whether negative attitude was a predictor of psychological problems in these mothers. Kaedah: Dalam kajian ini, 112 mothers of children having mild and moderate levels of autism disorder, Sindrom Down, and intellectual disability were assessed using the Parental Attitude Scale and General Health Questionnaire-28. Keputusan: Secara keseluruhan, mothers of children with intellectual disability were found to have the most negative attitude towards their child. Mothers of children with autism disorder exhibited higher scores on somatic symptoms, kegelisahan, and social dysfunction when compared with their counterparts with Down syndrome and intellectual disability. Negative attitude was a significant predictor of psychological problems. Kesimpulannya: Parental attitudes and psychological problems would vary among mothers of children with different types of developmental disability. © 2014 Hong Kong College of Psychiatrists.}, nota = {dipetik oleh 6}, kata kunci = {Dewasa, Keresahan, Artikel, Attitude, Autisme, Gangguan Spektrum Autisme, Anak-anak, Kajian Perbandingan, Kemurungan, Ketidakupayaan Perkembangan, Gangguan Perkembangan, Sindrom Down, Pendidikan, Perempuan, General Health Questionnaire 28, Home Care, Hostility, Manusia, Kecacatan Intelektual, Kemerosotan Intelektual, Kajian Klinikal Utama, Malaysia, Lelaki, Gangguan Mental, Mother Child Relation, Mothers, Named Inventories, Sikap Ibu Bapa, Parental Attitude Scale, Kelaziman, Psychological Well Being, Soal selidik, Skala penilaian, Budak sekolah, Social Disability}, pubstate = {diterbitkan}, tppubtype = {artikel} } Objektif: Parents' positive attitudes and psychological wellbeing play an important role in the development of the children with developmental disability. This study aimed to measure the prevalence of psychological problems among mothers of children with autism disorder, intellectual disability, and Down syndrome. The second aim was to assess the differences in mothers' attitudes and psychological problems among their children with intellectual disability, autism disorder, and Down syndrome. The third aim was to identify whether negative attitude was a predictor of psychological problems in these mothers. Kaedah: Dalam kajian ini, 112 mothers of children having mild and moderate levels of autism disorder, Sindrom Down, and intellectual disability were assessed using the Parental Attitude Scale and General Health Questionnaire-28. Keputusan: Secara keseluruhan, mothers of children with intellectual disability were found to have the most negative attitude towards their child. Mothers of children with autism disorder exhibited higher scores on somatic symptoms, kegelisahan, and social dysfunction when compared with their counterparts with Down syndrome and intellectual disability. Negative attitude was a significant predictor of psychological problems. Kesimpulannya: Parental attitudes and psychological problems would vary among mothers of children with different types of developmental disability. © 2014 Hong Kong College of Psychiatrists. |